Mental Health Awareness Week - Leukodystrophy
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Mental Health Awareness Week - Leukodystrophy
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YouTubeAlex TLC
Adrenoleukodystrophy MRI Brain Case #shorts
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Adrenoleukodystrophy MRI Brain Case #shorts
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YouTubeDEEP RADIOLOGY
The Rarest Disease You Never Heard Of #shorts #story #family #hope #leukodystrophy #tubb4a #fyp
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The Rarest Disease You Never Heard Of #shorts #story #family #hope #leukodystrophy #tubb4a #fyp
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YouTubeNARBE House
#tbcd #leukodystrophy
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#tbcd #leukodystrophy
3 views2 weeks ago
YouTubePoppy&Kaylee
#medicalparents #medicalmom #specialneeds #leukodystrophy #medicallycomplex
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#medicalparents #medicalmom #specialneeds #leukodystrophy #medicallycomplex
935 views3 weeks ago
TikTokleukodystrophylife
BEN'S ULTRA RARE DISEASE EXPLAINED #leukodystrophy #rare #explained #caregiver #hope #inspiration
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Purple Day
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Purple Day
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National Poetry Day - Aisling Finn
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What keeps you going through your child's health diagnoses 💛🫂
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YouTubeAlex TLC
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International Adrenal Disease Awareness Day
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3 years ago I just didn’t know… #tbcd #leukodystrophy #childloss #grief
25.8K views2 months ago
YouTubePoppy&Kaylee
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One year….one painful hard heavy year but one year closer to being reunited #childloss #bereavedmother #tbcd #leukodystrophy #tbcdawareness #griefjourney #oneyear
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TikTokpoppy_and_kaylee
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This one was hard….thank you for all your patience and support 🫶 #poppysstory #tbcd #leukodystrophy #childloss
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TikTokpoppy_and_kaylee
6:01
Quick answer- her body went from small spots of pneumonia to only one of her lungs having maybe 25% function. Her seizures were so frequent and almost impossible to control. Leukodystrophys cause the body to not function like a healthy body. Her muscles, organs, and brain couldn’t recover or heal. #leukodystrophy #leukodystrophyawareness #tbcd #tbcdawareness
3.3M viewsMay 29, 2023
TikTokpoppy_and_kaylee
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September is Leukodystrophy awareness month #leukodystrophy #leukodystrophyawareness #learnwithtiktok
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TikTokpoppy_and_kaylee
1:07
#Leukodystrophy can make it hard to swallow thin liquids, but Max has to take #Keppra every day. Here's how we make it easier! #dysphagia #TBCD #CureTBCD #tbcdawareness #leukodystrophyawareness #slp #disability #toddlermedicinehack #toddlermedicine #medicalmom #disabilityparenting #respectfuldisabilityparenting
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Poppy's Journey: Navigating Regression in TBCD
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Understanding Leo's Battle with Leukodystrophy
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TikTokpoppy_and_kaylee
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